Today in Kidney News- 3/5/14

Today in kidney news I am reading about a chemicle that is found in fish and was previously thought to be safe in small amounts can actuially cause damage to your kidneys. The article is here http://www.sciencedaily.com/releases/2014/02/140207083619.htm. They are still in the beginning phases of testing but it has been proven to damage the kidneys in rats (and how different are we really? :)) 

On a more posative note, I found this article from September about implantable artifical kidneys. Interesting read. http://www.medicalnewstoday.com/articles/266471.php. 

Hope everyone is doing well. As always, comments and suggestions are welcome. 

Spring 2014 NKF Community & Patient Education Symposium

Hello to my 3 followers ;). I haven't posted in a while. As I am sure is the case with everyone life gets a little crazy with working full time and 3x a week dialysis. I just wanted to throw out a quick post about this event I just heard about in Portland:

Spring 2014 NKF Community & Patient Education Symposium 
March 2, 2014 
9:30 AM - 2:00 PM 
Lorenzen Conference Center - Legacy Hospital Campus 
2801 N. Gantenbein Ave. 
Portland, OR 
Roz
Phone: (888) 427-5653 x517 
Lunch provided along with Key Note Speaker, Panel Discussion and Celebration of Everyday Heroes!

Here is a link to the NKF info page. There isn't too much info on that page (basically what I have listed above is copied from their page). I have requested more info and will post that soon as I hear back. I looked through the info from last years event and it looked pretty good :). 

Recipe- Sugar Popcorn

I have been looking for a way to have popcorn at home but all of the microwave popcorns have a ton of phosphate additives and I don't eat enough popcorn to buy my own air popper. I came a cross this recipe on the National Kideny Foundation website and thought NO WAY!! I had to share. It works like a charm and it tastes fresh instead of smashy like regular microwave popcorn often does. 

I am not diabetic and so I used regular butter and regular sugar but I am sure it will be just as good with the ones that they recommend. Give it a go and be sure to leave comments below and spread the word about the OKO blog. Have a happy fall!

SUGAR POPCORN

Appropriate for CKD, Dialysis, Diabetes (if sweetener used instead of sugar)

Serves 1

Ingredients:

¼ cup popcorn kernels 
2 teaspoon Smart Balance buttery spread
1 ½ packets Equal sweetener (or 2 teaspoon sugar)

Directions:

Place Smart Balance in a small microwavable covered dish. Microwave on power level 7 for 30 seconds or until melted.

Place popcorn in a standard size brown paper lunch bag. Fold down open end about 1/2" and fold over again another (about) 1/2".

Place bag in microwave on its side and microwave on high for about 2 1/2 minutes or until popping slows down.

Remove from microwave, carefully open bag as the popcorn will be hot. Add melted Smart Balance and Equal (or sugar). Close bag, shake vigorously to mix, enjoy.

Analysis:

Calories 170 (202 with sugar), protein 3g, carbohydrates 21g (51g with sugar), fat 7.5g, sodium 60 mg, potassium 84 mg, phosphorus 85mg

This recipe was submitted by Susan Scarpelli, RD.

-- Here is the link for the National Kidney Foundation's recipe page. Lots of good stuff!

http://www.kidney.org/patients/kidneykitchen/recipes.cfm

Oh the winter time blues...

As the rain sets in here in Oregon many of us find that we are sucked in by the winter time blues. The days get shorter, wetter and colder and you can't help but wish that you could stay in bed all day and eat nothing but hot chocolate and candy. So in honor of the first great deluge of the season some tips for keeping your head above water and your mood out of the gutter:

1. Exercise- we don't want to do it and for some of us perhaps we think it is out of the range of possibility, think again. Exercise is possible for most of us. We don't have to be marathon runners or gym rats to get a little exercise. Try starting with 10 or 15 minutes of dancing or walking a day. If you have mobility issues there are some great chair yoga videos on you tube (look for links at the bottom of this post). Also many of the local aquatic centers have aqua aerobic classes which, I know I know sound lame, but they are really fun. Check out your local gym or aquatic center, if you need help locating a class please contact me and I will help you find out if there is a location near you. The bottom line is- get up and get moving. 

2. You are what you eat- If you are anything like me as soon as the cold weather sets in I want to start eating every bad food in sight. It is so much easier to eat healthy in the summer when fresh fruits and veggies are readily avalible. In the winter a lot of these foods go away and then you have to be much more careful about the processed foods. Those who suffer from winter depression tend to have a penchant for sweets which can get you into trouble quickly.  

3. Get outside- So the weather is crappy, this is Oregon. In most parts of the state we have learned to adapt to the rain. It is wet here for about 9 months out of the year, if you are going to let a little rain stop you you should probably move south. For the intrepid types, slip on that poncho and pull on those rain boots and get outside during daylight hours. Even 20 minutes a day can give you a little boost of vitamin D as well as a mental boost from the fresh air and exercise. There may not be much sunlight eeking through but it is there! 

4. Don't become a hermit- Get out and socilize whenever possible. CKD/ESRD can often be a lonely and scarey disease but you are not alone. Reach out to your friends and family, support groups both online and in your community. Knowing that there are other people out there who are going through what you are going through is so importiant. Don't be afraid to reach out and ask for support when you need it. 

And last but not least....

5. Laugh- As they say "laughter is the best medicine". I don't knwo who said it but I am sure that they are right. Watch a funny movie, have a girls/guys night out, go to a hockey game or to a comedy club (Portland has some great comedy clubs if you like comedy). Just get out there and enjoy life, having an illness does not mean you have to give up fun. Show winter that you can still have fun even if it does rain on  your parade. 

In conclusion, don't let winter (or CKD) get the best of you. Get out there and do the things you want to do (even if sometimes it seems like staying in bed would be so much easier). Oregon is beautiful, even in the rain, enjoy it.

Chair Yoga Links

- http://m.youtube.com/watch?v=WYzZUVBmZCQ&desktop_uri=%2Fwatch%3Fv%3DWYzZUVBmZCQ

- 

Recipie- Apple Cider Beef Stew

In honer of the icky cold rain and wind that has moved into Oregon a yummy stew recipie. From the Davita website, Apple Cide Beef Stew. I have not tried it yet but it will be on the menu for sometime this week. Looks like a good option for dialysis and diabeties patients. It does have potatos in it (which you may know is a no no food) but only 1 1/2 cups for the whole recipe so you should be good :)

Leave a comment if you try it out. Would love your feedback! Stay warm and dry out there. 

http://www.davita.com/recipes/soups-and-stews/apple-cider-beef-stew/r/6131

You thought you had it bad on a regular diet, try a renal diet!

So for those that are new to the CKD/ESRD/dialysis community you are probably just being introduced to the renal diet. Before I got sick I was just like any other 31 year old, I mostly ate like crap, drank WAY too much soda and best of all ate pretty much whatever I wanted. Upon being diagnosed with CKD I had a crash course in the bad P's; phosphate and potassium. There are many toxins that can build up in the body when your kidneys stop functioning but these 2 are the ones they will focus on the most. 

Here is a great link from the National Kidney Foundation website that tells you all about phosphate (phospherus) http://www.kidney.org/atoz/content/phosphorus.cfm , It gives you a good list of good and bad foods. This is not by any means a complete list but it is a great place to start. And this link will take you to information about potassium http://www.kidney.org/atoz/content/potassium.cfm. The NKF website is a great informational website for people just starting out. 

The long and the short of it is that you have to avoid foods with too much of either of these. It is a lengthy list and I guarantee it will not be easy for most people but trust me, if I can do it so can you! 

Some tips:

- Don't freak out when you see the list. For most people there is some wiggle room and you will not have to give up all of the food that you love. Work with your dietitian to fit in the foods that you really love, 

- Avoid all of the obviously bad for you foods; i.e, fast food, soda, pre-packaged meals. All of these are VERY high in phosphorus. Also, it is an artificial phosphorus which is often used in preservatives and it is much worse than naturally ocurring phosphorus. 

- Be cautious with anything that is not a fresh fruit or vegetable. Many packaged foods have hidden phosphorus in the form of preservatives. A few surprise bad foods to watch for are; lunch meat, meat (all kinds, even fresh from the grocery store). 

I am sure there are a million things that I am missing but these are just a few tips to get you started. If you have questions or comments please feel free to leave them below. I am not an expert by any means but I am happy to try and anwser or share my resources. This is a big life change that has been thrust upon us, patient and families alike and we all need to stick together. 

Update- We're Gettin' There

So the last week or so has been pretty crazy but I have managed to take baby steps toward establishing a non profit corperation for OKO. I have a couple more forms to file and then it is just a waiting game. 

On a personal front I have a meeting next week with the transplant clinic which I am nervous and excited about, fingers crossed it goes well! 

I am working on a few informational posts, I hope to post the first one today. I am currently at dialysis and the wifi here isn't great so we shall see if they will post :). There is a Facebook page set up for Oregon Kidney Outreach which I have not really told anone about but has already gotten 3 likes (not including me) so that is pretty cool. Check it out and give us a thumbs up and spread the word. 

I hope everyone is doing well and as always if you would like to get involved with OKO we are currently looking for people to do informative blog posts and a few other projects for the website. You can comment below, e mail me at sharonnelson123@gmail.com or message me on Facebook. 

Thank you for the support!